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Family Caregiver Agreements: What the Rule Actually Is

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What this guide covers

A quick view of the questions and evidence developed below.

What we actually found, which is less than you have been told
What the agreement should therefore do
The timing that actually governs
The separate exception worth knowing about
Being paid is not the only thing to sort out

Updated August 2, 2026. Quick answer: if a family member is being paid to care for a parent, put it in writing before the money starts moving. Not because a federal rule requires a particular document — we looked, and there is no federal checklist — but because Medicaid penalises transfers made for less than fair market value, and an undocumented monthly payment to a daughter looks exactly like a gift when someone examines it three years later.

What we actually found, which is less than you have been told

Almost every page on this subject presents a firm list of requirements — written contract, fair-market hourly rate, prospective payment only, contemporaneous logs — as though it came from a federal rulebook.

It does not. We searched the statute, medicaid.gov and cms.gov and found no federal provision setting out formalities for a personal-care agreement. What exists is one sentence in the transfer-of-assets rule, and everything else is built on top of it:

“if an institutionalized individual or the spouse of such an individual … disposes of assets for less than fair market value on or after the look-back date …, the individual is ineligible for medical assistance”

42 U.S.C. 1396p(c)(1)(A)

Read it the right way round and it is good news. The statute penalises giving assets away. Paying a fair price for real services is not giving anything away. A caregiver agreement is not a loophole; it is the ordinary evidence that a payment was compensation rather than a gift.

The familiar checklist is the practitioner convention that grew up around that sentence, and state agencies apply it case by case. That is a real standard you will be held to — it is simply not a federal statute, and anyone telling you otherwise has not read the statute.

What the agreement should therefore do

Everything below serves one purpose: making it obvious, to someone reading it years later with no knowledge of your family, that money changed hands for services at a fair price.

  • In writing, signed, dated, before the care starts. A document produced after a Medicaid application exists to explain payments that already happened, which is precisely what it must not look like.
  • A rate you can point to. What a local agency charges for the same hours is the natural benchmark, and it is worth keeping the quote that establishes it.
  • Prospective only. A lump sum for years of care already given is the single most challenged arrangement in this area.
  • Hours and duties written down as they happen. Contemporaneous beats reconstructed, always.
  • Paid by traceable transfer, and declared as income. The caregiver owes tax on it. A family member unwilling to declare the income is telling you the arrangement will not survive scrutiny.

The timing that actually governs

The look-back is 60 months for transfers made on or after 8 February 2006 (36 months in the older category the statute still names). Anything inside that window gets examined, and an uncompensated transfer produces a penalty period computed by dividing what was given away by the average monthly private-pay cost of nursing care in your state — which is a number you can calculate in advance.

Note what that means: the penalty is not a fine, it is a period of ineligibility, and it starts when the person would otherwise have qualified. That is why it lands at the worst possible moment.

The separate exception worth knowing about

A child who moves in and provides the care can sometimes receive the home without penalty — the statute permits transfer to a son or daughter “who was residing in such individual’s home for a period of at least two years immediately before” institutionalisation and whose care “permitted such individual to reside at home”. It is narrow, it is judged by the state, and it is a different mechanism from being paid. The caregiver child exemption in detail.

Being paid is not the only thing to sort out

If you are the one providing care, the tax side may also be yours: whether you can claim your parent and whether their care costs are deductible even if you cannot. And the wider funding question sits at how care actually gets paid for.

Transfer rules and the fair-market-value test from 42 U.S.C. § 1396p(c); the caregiver child exception from § 1396p(c)(2)(A)(iv). We found no federal source prescribing the form of a personal-care agreement, and say so above rather than presenting convention as rule. Medicaid is administered by states and the detail varies. Read August 2026. General information, not legal advice — a Medicaid application is worth a lawyer.

The numbers behind this. Family caregiver statistics — 63 million caregivers, a 45% rise in a decade, and the financial figures: over a third have stopped saving and 23% are in debt.

The tax side of paying a family member. $3,000 in cash wages for 2026 triggers FICA, and the family exclusions flip depending on who the employer is — the household-employee reality, which is also what makes this agreement stand up later.

Before the family funds this arrangement out of pocket, check whether a life policy in the household carries a care rider — a qualified LTC rider can pay for care from a family caregiver in some contracts, and an accelerated death benefit generally reimburses incurred costs. Which one it is decides whether this agreement is fundable from the policy.

Before the family funds the arrangement privately, check whether the caregiver’s own state pays for this: 15 jurisdictions run a paid family leave programme, and in the programme states the benefit generally covers leave to care for a parent or spouse with a serious health condition — not only new babies.

For professionals, and for anyone helping someone else: this page is designed to print as a clean handout. Press Ctrl+P (Cmd+P on a Mac) and the site navigation drops away, leaving the guide and its sources.

Free to print, copy and share for any purpose, including commercially, with attribution — Creative Commons Attribution 4.0 (CC BY 4.0). No permission needed and no need to tell us. More printable guides, and the licence in full.

Or skip the private agreement: Medicaid may already pay for it. Added September 3, 2026

Everything above covers a private, self-funded arrangement. 25 states also run a program that pays a family caregiver directly through Medicaid, researched at each state’s own agency below; the remaining states and DC follow in a later tranche.

StateProgramFamily can be paid?
AlaskaPersonal Care Services (PCS) and Community First Choice (CFC) Personal Care Services (Alaska Medicaid, Division of Senior and Disabilities Services)Partial
ArizonaALTCS Direct Care Services, Spouse/Parent as Paid Caregiver optionYes
ArkansasIndependentChoices (1915(j) self-direction) and ARChoices in Homecare (1915(c) HCBS waiver), Arkansas Department of Human ServicesPartial
CaliforniaIn-Home Supportive Services (IHSS)Yes
ColoradoConsumer-Directed Attendant Support Services (CDASS), a service-delivery option under Community First Choice (CFC)Yes
ConnecticutPersonal Care Attendant (PCA) Program (includes the Adult Family Living service)Yes
DelawareSelf-Directed Attendant Care (SDAC), part of Diamond State Health Plan Plus (DSHP Plus) Long-Term Services and SupportsYes
FloridaParticipant Direction Option (PDO), within the Statewide Medicaid Managed Care Long-Term Care (SMMC LTC) ProgramYes
GeorgiaStructured Family Caregiving (SFC) / CD-PSS, Elderly and Disabled WaiverYes
HawaiiSelf-Direction Program (QUEST Integration self-directed Personal Assistance / Respite services)Yes
IdahoMy Voice, My Choice (Self-Directed Services)Partial
IllinoisCommunity Care Program (CCP) In-Home Services (Illinois Department on Aging); Home Services Program (HSP) Personal Assistant (Illinois DHS)Yes
IndianaStructured Family Caregiving (SFC), available under the Health & Wellness, Traumatic Brain Injury, and PathWays for Aging 1915(c) waiversYes
IowaConsumer-Directed Attendant Care (CDAC)Partial
KansasPersonal Care Services (PCS), Self-Direction option under Kansas HCBS waivers, administered via KanCare/KDADSYes
KentuckyParticipant Directed Services (PDS), formerly the Consumer Directed Option (CDO), under Kentucky’s 1915(c) HCBS waiversYes
LouisianaCommunity Choices Waiver, Self-Direction (SD) optionYes
MaineConsumer-Directed Attendant Services (CDAS)Partial
MarylandCommunity First Choice (CFC), self-directed Personal Assistance ServicesYes
MassachusettsMassHealth Personal Care Attendant (PCA) ProgramPartial
MichiganHome Help Program (MDHHS)Partial
MinnesotaCommunity First Services and Supports (CFSS) and Consumer Directed Community Supports (CDCS)Yes
MississippiIndependent Living (IL) Waiver, PCA optionPartial
MissouriConsumer Directed Services (CDS), Personal Care Assistance, State Plan (Consumer-Directed Service Model)Partial
MontanaSelf-Directed Community First Choice Services / Personal Assistance Services (SD-CFC/PAS)Yes

Or skip the private agreement: Medicaid may already pay for it. Added September 4, 2026

Everything above covers a private, self-funded arrangement. 25 more states and DC also run a program that pays a family caregiver directly through Medicaid, researched at each state’s own agency below, closing this family to all 51.

StateProgramFamily can be paid?
District of ColumbiaServices My Way (Participant-Directed Community Supports) under the Elderly and Persons with Physical Disabilities (EPD) WaiverYes
NebraskaPersonal Assistance Services (PAS), Nebraska Medicaid’s self-directed state plan personal care optionYes
NevadaSelf-Directed Personal Assistance Services (PAS) and the Structured Family Caregiving (SFCG) waiverUnclear
New HampshireChoices for Independence (CFI) waiver, Participant Directed and Managed Services (PDMS) optionUnclear
New JerseyPersonal Preference Program (PPP), New Jersey’s self-directed Personal Care Assistant optionYes
New MexicoMi Via Self-Directed Waiver, a 1915(c) Home and Community-Based Services waiverYes
New YorkConsumer Directed Personal Assistance Program (CDPAP)Yes
North CarolinaCommunity Alternatives Program for Disabled Adults (CAP/DA) and for Children (CAP/C), CAP Consumer Direction optionYes
North DakotaFamily Personal Care (FPC), a Qualified Service Provider category under North Dakota’s HCBS Medicaid waiversYes
OhioConsumer-Directed Personal Care Service (CD-PCS) and Choices Home Care Attendant Service (C-HCAS)Yes
OklahomaADvantage 1915(c) Waiver, Consumer Directed Personal Assistance Services and Supports (CD-PASS)Yes
OregonConsumer-Employed Provider (CEP) Program, including the Spousal Pay (SP) and Independent Choices (ICP) ProgramsYes
PennsylvaniaCommunity HealthChoices (CHC) Waiver, Services My Way (Budget Authority) / Participant-Directed Community SupportsYes
Rhode IslandPersonal Choice Program, Rhode Island’s Cash and Counseling self-direction modelYes
South CarolinaCommunity Choices Waiver, Attendant Care (Self-Directed)Yes
South DakotaAssistive Daily Living Services (ADLS) Waiver, Personal Attendant ServicesYes
TennesseeTennCare CHOICES, ECF CHOICES and Katie Beckett Consumer DirectionYes
TexasConsumer Directed Services (CDS) option, under STAR+PLUS, STAR Kids and other Texas Medicaid programsYes
UtahSelf-Administered Services (SAS) model and Employment-related Personal Assistant Services (EPAS)Yes
VermontChoices for Care, Flexible Choices participant-directed optionYes
VirginiaConsumer-Directed (CD) Services under the CCC Plus, Community Living, and Family and Individual Supports WaiversYes
WashingtonCommunity First Choice (CFC) / Medicaid Personal Care Individual Provider (IP) programYes
West VirginiaPersonal Options, the self-directed model of the Aged and Disabled Waiver (ADW)Yes
WisconsinIRIS (Include, Respect, I Self-Direct) Self-Directed Personal Care (SDPC)Yes
WyomingCommunity Choices Waiver (CCW), Participant-Direction optionYes

Closing the family to 51/51: Alabama. Added September 17, 2026

Everything above covers a private, self-funded arrangement. Alabama also runs a program that pays a family caregiver directly through Medicaid, researched at the state’s own agency below, closing this family to all 51 states plus DC.

StateProgramFamily can be paid?
AlabamaPersonal Choices, Alabama Medicaid’s self-directed (Cash and Counseling-model) option under the Elderly and Disabled (E&D) Waiver and other HCBS waiversYes

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